Your child had surgery to repair a heart defect. If your child had open-heart surgery, an incision was made through their breastbone. They were also put on a heart-lung bypass machine. If your child had closed-heart surgery, or minimally invasive surgery, they had an incision made between 2 of their ribs.
After the surgery, your child probably stayed in the intensive care unit and then in another part of the hospital.
Your child will need at least 3 or 4 more weeks at home to recover. For larger surgeries, recovery may take 6 to 8 weeks. Talk with your child's doctor about when your child can return to school, daycare, or participate in sports.
Pain after surgery is normal. There may be more pain after closed-heart surgery, compared to open-heart surgery. This is because nerves may have been irritated or cut. Usually, the pain is minimal after the second day and is easily managed with acetaminophen (Tylenol).
Many children behave differently after heart surgery. They may be clingy, irritable, have nightmares, wet the bed, or cry. They may do these things even if they were not doing them before their surgery. Support your child through this time, and slowly begin to set the limits that were in place before the surgery.
If your child is an infant, try not to let them cry for too long for the first 3 to 4 weeks. Help keep them calm by staying calm yourself. When lifting your child, support both their head and bottom for the first 4 to 6 weeks.
Toddlers and older children will often stop any activity if they become tired.
The doctor or nurse will tell you when it is okay for your child to return to school or daycare.
For the first 4 weeks after surgery, your child should not do any activity where there is a chance they could fall or take a blow to the chest. Your child also should avoid bicycle or skateboard riding, roller skating, and all contact sports.
Your child may climb stairs, and swimming is okay after their Steri-Strips have fallen off.
If your child has an incision through the breastbone, you must be careful how they use their arms and upper body for the first 6 to 8 weeks:
Keep a close eye on your childÃ¢â‚¬â„¢s diet to make sure they get enough calories to heal and grow.
After heart surgery, most babies and infants (younger than 12 to 15 months) can take as much formula or breast milk as they want. Sometimes the doctor may want your baby not to drink too much formula or breast milk. Ask your childÃ¢â‚¬â„¢s doctor any other questions about your child's nutrition.
Limit feeding time to around 30 minutes. Your childÃ¢â‚¬â„¢s doctor or nurse will tell you how to add extra calories to formula.
Toddlers and older children should be given a regular, healthy diet. The doctor or nurse will tell you how to improve the child's diet after surgery.
Wash all the incisions, once a day with soap and water. Pat them dry. Look at the wound for signs of infection, which are redness, swelling, and drainage.
Your child should take only a shower or a sponge bath. Their Steri-Strips should NOT soak in the water. Steri-Strips will begin to peel off after the first week. It is okay to remove them when they start to peel off.
For as long as the scar looks pink, make sure it is covered with clothing or a bandage when your child is in the sun.
Ask your childÃ¢â‚¬â„¢s doctor before getting any immunizations for 2 to 3 months after surgery. Afterwards, your child should have a flu shot every year.
Many children who have had heart surgery must take antibiotics before, and sometimes after, having any dental work. Make sure you have clear instructions from your childÃ¢â‚¬â„¢s heart doctor when the child needs antibiotics. It is still very important to have your child's teeth cleaned regularly.
Your child may need to take medicine when they are sent home. These may include diuretics (water pills) and other heart medicines. Be sure to follow the correct dosage. Follow up with your doctor 1 to 2 weeks after the child leave the hospital.
Call the doctor if your child has:
Congenital heart surgery - discharge; Patent ductus arteriosus ligation - discharge; Hypoplastic left heart repair - discharge; Tetralogy of Fallot repair - discharge; Coarctation of the aorta repair - discharge; Heart surgery for children - discharge; Atrial septal defect repair - discharge; Ventricular septal defect repair - discharge; Truncus arteriosus repair - discharge; Total anomalous pulmonary artery correction - discharge; Transposition of great vessels repair - discharge; Tricuspid atresia repair - discharge; VSD repair - discharge; ASD repair - discharge; PDA ligation - discharge; Acquired heart disease - discharge; Heart valve surgery - children - discharge; Heart surgery - pediatric - discharge; Heart transplant - pediatric - discharge